Quick background, I’m 28 and overall no underlying health issues that I know of. The past 4 years I have been having dizzy spells, jaw/ear with neck pain and stiffness. Went to an ENT to have it checked out. He said it could be TMJ or ETD. Treated for ETD with tubes and balloon dilation of the eustachian tube. After the operation the dizziness is chronic. Had the feeling of a stroke after the op and went to the ER for examination. They did a CT of head and neck with contrast and found no signs of a stroke and sent me home. On a whim I decided to pick up the images and have a look myself. While looking through them I found my SP and counted the frames it was visible. (14 frames left ,12 frames right) With information I could gather online that puts them roughly at 28mm (left) and 24mm (right). They are of average length. However after looking over them more I found what looks to be my IJV being compressed on both sides. Went back to the ENT with the CT disk but the report says nothing of IJV compression so he didn’t even look at the images on the disk. Told him my symptoms are worse after ETD op and he ordered an MRI of head and neck while referring me to an ENT at the U of Kentucky. I asked him to check my SP and he couldn’t feel anything.
Here are some images I took from the disk that have me concerned
These blobs expand to circles further down my neck
I am lost and feel hopeless. It feels like I know what’s wrong with me but I cant get anyone to listen.
Finding this site has been the only comforting factor in all this. This condition is rare and I understand why they want to pass it off for something more common. Hope I can find answers soon.