I’m a fairly new forum member and this is my first post. Firstly I just wanted to say how helpful I’ve found the Newbies Guide section.
Here’s my story and hopefully the kind people on here can offer me advice (I’m located in the UK btw).
I’ve been having a frustrating few months. My symptoms (feeling as if there is a lump in throat and often sharp pain in that area on right hand side, persistent ear and jaw pain on same side, all gets much worse when I turn my head to the right) started about 6 months ago and have been continuous. Sometimes the pain in my ear and jaw is so bad! I saw 4 GPs at my GP surgery before one of them eventually referred me to an ENT consultant at the hospital. It was whilst I was waiting for my initial appointment that I stumbled across Eagle Syndrome and this forum. Reading some of the posts from people on here describing their symptoms, it was as if I had written those posts myself, the symptoms were exactly the same! I’m convinced I have it, and since finding out about Eagles, I have felt round the back of my right tonsil and can feel something hard, almost like a hard piece of twig inside my throat! It’s not there on the left.
Anyway, at the ENT hospital appointment (in November) he scoped my throat and of course saw nothing. He told me there was nothing to worry about and that it was the muscles in my neck contracting and it would eventually go away. When I asked about Eagle Syndrome he dismissed it (to be honest I’m not sure he knew what it was). He didn’t offer me a CT scan. He just told me to stop being so anxious and it will go. Well it hasn’t.
Today I went back to my GP taking a load of information about Eagles to show him and asking to be referred elsewhere and gave him some names if UK based consultants from this forum. He was quite cross with me for “Googling my symptoms” and told me not to trust online forums. He said he had “never heard of this Syndrome” and that I need to see an Osteopath for my neck pain. I almost cried in the appointment but fortunately made it to the car park before I burst into tears.
I don’t really know what to do next. Perhaps I haven’t got Eagles and perhaps it will all just go away. But I’m so frustrated and in pain that I want to do something about it. I wonder whether I should save up some money and see a consultant (one of the UK ones listed on this forum) privately as I don’t think I have a chance in getting referred by my GP on the NHS. Does anyone on here UK based know whether a consultant will see you privately without a referral letter?
Thanks all (sorry for such a long post!).