Hello everyone, thanks for reading this. Here is the ‘short’ version of my story: Male, 43.
About 2 yrs ago: Hit to side of face with hockey stick wearing full mask. No loss of consciousness. Seemed ok that day. Headache the next day. One week later: severe temple headache on right side (side of impact). Head MRI, EEG, Head CT, neuro exam all negative. Dizziness, nausea, tinnitus. Treated for concussion. Headaches got better but never went away. Dizziness, nausea went away. Tinnitus never went away. Not sleeping well, anxiety on the rise. Was diagnosed with moderate obstructive sleep apnea, started CPAP therapy.
1 year ago: Headaches came back, pain in the temple area, worse when chewing/talking/physical activity. Noticed tinnitus was worse when clenching teeth or looking down. Thought headaches and tinnitus were from TMJ disorder. Have a narrow jaw, narrow airway, cross bite. Started TMJ therapy (wearing bite guard at night, then one to wear 24/7, tried acupuncture, massage, tens, botox, Phys. therapy). TMJ therapy did not significantly reduce headaches. Went to headache clinic, tried different meds (neurontin-not much relief, muscle relaxers-some small relief).
2 months ago: Dr. ordered neck CT: Elongated styloid process (3.8, and 3.9cm). Bilateral compression of jugular veins. The radiologist report says this ‘can be seen in the setting of ES’ but does not say I have ES… Headache Dr. and ENT both said this is not significant, not ES.
So still have:
Daily headaches on right side temple area between 2-6 out of 10. Flare ups can be 7-8. Some headache on the left side, maybe 1-3 out of 10.
Worse with activity, worse after chewing, worse after talking
Need to rest throughout the day due to headaches
Slightly restricted jaw opening (~40mm), tight jaw muscles
Right hand colder than left. Not always, in certain body positions
Neck tight, but not really pain
Tinnitus, both sides, high frequency noise, no hearing issues.
No throat pain, I have a narrow airway but I don’t really have a problem swallowing.
I am interested in any feedback if this sounds like ES. Can you have ES without throat pain? My ENT said no throat pain means no ES. Said the bilateral jugular compression did not mean ES. If this is correct then I can probably move on, but there seems to be overlap between my symptoms and test results.
I see a lot of people post they have TMJ issues, I found that interesting that some have stated they were mis-diagnosed with TMJ. I have tried TMJ treatments without much success.
Talking and chewing really can flare up my headaches (temple area), anyone else have that?
I am in michigan, I saw some people had to go out of state for a proper diagnosis/treatment. The closest ENT on the Dr list needs a referral to see. I saw someone else in the same office hoping they would be familiar with ES, but the response was no throat pain no ES.