US Doctors Familiar With Eagle Syndrome 2019:
THIS IS A LIST OF DOCTORS WHO HAVE HELPED SOME OF OUR MEMBERS FIND SOLUTIONS TO EAGLES OR WHO SOME OF OUR MEMBERS HAVE
HEARD OF. The list is not exhaustive. The intent is to provide a starting point for those of us looking for solutions. THESE ARE NOT RECOMMENDATIONS! Some of these doctors have worked for some members, but not others. Please use your own judgement when determining which doctor to use.
•Dr Joseph Brigance, 201 Whitesport Dr SW, Huntsville, AL 35801, (256) 881-5353, http://www.entofhuntsville.com
•Dr Donald Endres, ENT/ Head & Neck Surgeon. Geneva Woods ENT Associates, Inc., 3730 Rhone Cir # 203, Anchorage. 907- 563- 3515
•Dr John Milligan, Arizona Otolaryngology Consultants, Phoenix 602- 264 -4834, http://www.aocphysicians.com (another possible doctor there is Dr Peter Weisskopf, Neurology)
•Dr Matthew Neal, Mayo Clinic, Phoenix - https://www.mayoclinic.org/biographies/neal-matthew-t-m-d/bio-20322389
•Dr Hussein Samji, Camino ENT Clinic, San Jose 408- 227- 6300 http://www.caminoent.com/professionals/drhussein-samji-camino-ent.html (one of the most experienced ES surgeons in the US, does external surgery.) Contact his medical assistant Yerelin@caminoent.com for a faster response.
•Dr William Lewis, ENT of Los Gatos, Los Gatos 408- 395- 6121
•Dr. Edward Joseph Damrose, 801 Welch Rd, Palo Alto, CA 1-650-723-5281
•Dr. Karuna Dewan, 801 Welch Rd, Palo Alto, CA (650) 723-5281 (Did surgery for Hyoid Bone Syndrome on one member)
•Dr Andrew Goldberg, UCSF, San Francisco 415- 353- 2603
•Dr G Lekovic, House Ear Clinic, Los Angeles 213- 483- 9930 http://www.houseearclinic.com/lekovic (also in Orange County, see website)
•Dr Dinesh Chhetri, UCLA, Los Angeles (ENT/ Otolaryngologist, Head and Neck Surgeon) https://www.uclahealth.org/dinesh-khatri-chhetri
•Dr Avraham Mendelsohn, Los Angeles https://www.uclahealth.org/avraham-mendelsohn
•Dr Gerald Berke, Los Angeles, UCLA Medical Center 310- 794- 8634 (has reportedly done ES surgery, but not on any forum members that we know of) https://www.uclahealth.org/provider/gerald-berkemd
•Dr Henry Chen, Los Angeles, Cedars-Sinai 1- 800- 233- 2771 http://bio.csmc.edu/view/8040/chenhen.aspx (doesn’t have a lot of experience with Eagles surgery, but did a successful revision surgery on one member)
•Dr Bruce Gewertz, Los Angeles, Cedars Sinai 1- 800- 233- 2771 http://bio.csmc.edu/view/3581/Bruce-L-Gewertz.aspx
•Dr. Ryan Osborne - https://ohni.org/los-angeles-ent-doctors/
•Dr Christopher Yian, Orange County ENT, Irvine/ Laguna Hills 949- 305- 8000/ 949- 679- 9000 http://www.memorialcare.org/apps/docfinder/provider_detail.cfm?site=S&phys_id22472
•Dr Dennis Crockett, Mission Viejo, http://www.hnaoc.com/dennis-crockett-md-faap-facs.html 949- 396- 3110
•Dr Christopher Duma, Newport Beach, Hoag Hospital, (was mentioned by a member, but we don’t know how much experience he has)
•Dr Brendan Gaylis, Scripps Clinic, Torry Pines, La Jolla 1- 800- 727- 4777 http://www.scripps.org/physicians/4128-brendangaylis-md-facs
•Dr. Brian Jian (Neurosurgeon) & Dr. Balough (Neurotologist) & Dr. Ji (Neurosurgeon/Neurointerventional Radiologist) - KAISER SACRAMENTO, 6600 Bruceville Rd, Sacramento, CA, 916-688-2000
Dr Hepworth, IMMUNOe, 3150 E 3rd Ave, Denver, CO 80206 (303) 224-4711 http://www.immunoe.com
•Dr Jeffrey Scott Magnuson, Florida Hospital Celebration (Has done intra-oral robotic surgery, on member pinkeagle)
•Dr Dzigielewski, UF Health, ENT, Shands Hospital, Gainsville 352- 265- 0920 www.ufhealth.org/peter-dziegielewski (does intraoral surgery, wouldn’t help two members; believes there must be pain upon styloid palpation for surgery to be necessary).
•Dr Geoffrey Young, Mayo Clinic 4500 San Pablo Rd S, Jacksonville 32224
•Dr Gilberto Alemar, Cleveland Clinic, Weston 954- 659- 5786 (has done many ES surgeries, but other doctors at the Cleveland Clinic don’t believe in vascular ES, so we don’t know if he does) https://my.clevelandclinic.org/staff/4109-gilberto-alemar
•Dr Raam Lakhani, Watson Clinic, Bella Vista Building, Lakeland 863- 680- 7468 https://www.watsonclinic.com/physicians/raam-s-lakhani.html
•Dr David Arnold U of Miami Health Systems, Miami 305- 243- 4000 (mentioned by one member but don’t know how surgery went, successful surgery with another.) http://uhealthsystem.com/doctots/profile/1288
Dr Rui Fernandes, University of Florida and Shands Hospital
•Dr. Guy Petruzzelli Memorial Health University Medical Center, Savannah, 912- 350- 2299, 4700 Waters Ave, Savannah, https://memorialhealth.secure.ehc.com/physicians/?accepted_safe_harbor=true&lastName=P
•Dr Scott Newman, KaiserPermanente, Wailuku Maui 808- 243- 6000 (only takes Kaiser patients)
•Dr Lawrence Burgess, Honolulu (did intra-oral surgery, but just broke tip off, so check he would remove more & smooth tip)
•Dr Jeff Burry, Valley ENT, Lewiston 208- 746- 0193 http://valleyentgroup/providers/index.html
•Dr Jason Cundiff, Crystal Lake (Does intra-oral and external surgery) http://jasoncundiff.com/
•Dr Miloro, University of Illinois, Chicago 312- 996- 7640 http://hospital.uillinois.edu/Find_a_Doctor/Michael_Miloro.thm
•Dr Michiel Bove, Northwestern Medical Group, Chicago 312- 695- 8182 https://www.feinberg.northwestern.edu/faculty-profiles/az/profile.html?xid=16846
•Dr Urjeet Patel, Northwestern Medical Group, Chicago 312- 695- 8182
•Dr Luke Philippsen, IU Health Ball Memorial Otolaryngology, 2525 W University Ave, Suite 502, Muncie, IN 47303, (765) 284-2172
•Dr Douglas Van Daele, ENT, University of Iowa Hospitals and Clinics, 200 Hawkins Dr, Iowa City, IA 52242, (319) 353-8162 https://uihc.org/douglas-van-daele (mentioned by Hawk87 & amsriesen)
•Dr Eric Purdom, NE Kansas Facial Plastic and ENT 785- 539- 3504
•Dr Keith Sale, KU Medical Centre , Kansas City 913- 588- 6701 (mixed results)
•Dr Bumpous, U of L Physicians, 401 E Chestnut St # 710, Louisville, KY 40202, (502) 583-3687 https://www.uoflphysicians.com/ear-nose-throat
•Dr Daniel Nuss, Lake Head and Neck Center, Baton Rouge, Mary Bird Perkins Cancer Center (Skull base surgeon) ~ Has recently been cancelling appointments, so it may be hard to get in to see him.
https://ololrmc.com/site-search/search-results?q=dr daniel nuss
Dr Moore, New Orleans- has done a research paper but we don’t kno about whether he’s done surgeries.
•Dr Elizabeth Guardriani, University of Maryland Medical Centre, Baltimore 1- 866-408- 6885 http://www.medschool.umaryland.edu/profiles/Guardiani-Elizabeth/
•Dr Rodney Taylor, University of Maryland Medical Centre, Baltimore 1- 866- 408- 6885
•Dr Timothy Anderson, Lahey Clinic 744- 781- 8467 https://physicians.lahey.org/details/1565/timothy-anderson-otolaryngology_ear_nose__throat-burlington
•Dr Timothy Osborne, Boston University Medical Center, 617- 638- 4350 https://www.bmc.org/about-us/directory/doctor/timothy-m-osborn-md-dds-facs
•Dr Donald Annino, Brigham and Womens, Boston (surgeries on several members) https://physiciandirectory.brighamandwomens.org/details/1975/donald-annino-jr-otolaryngology_ears_nose_and_throat-boston
Dr Jalisi, Beth Israel, Boston. Has done a research paper on Eagles, but don’t know about surgery.
•Dr Candice Colby-Scott (co-wrote a research paper on ES/ SHCS, but told one member she’s not doing surgery any more)
•Dr Gregory Artz, Grand Rapids ENT, https://grentpc.com/
•Dr Carlos Ramierez, St John Providence 586- 779- 7610 https://amomfs.com/carlos-a-ramirez%2C-md-dds
•Dr Dennis Borjab, Michigan Ear Institute 248- 865- 4444 http://www.michiganear.com/ear-doctor-dennis-bojrab-md.html
•Dr Wm Garvis, Abbott Hospital, Minneapolis 612- 871- 1144 www.entsc.com
•Dr Frank Ondrey, University of Minneapolis Medical Center 612- 625- 7400 (Does intra-oral surgery in most cases & breaks styloid off close to normal length not at skull base. Also questions whether neurological symptoms are related to ES) https://www.ent.umn.edu/bio/ent-faculty/frank-ondrey
•Dr Matthew Conoyer, Midwest ENT Centre, St Peters 636- 441- 3100 https://entmidwest.com/our-practice/dr-j-matthew-conoyer/
•Dr Dan Lydiatt, University of Nebraska Medical Centre, Methodist Clinic . Clinic 402- 559- 1700, Office 402- 559- 7775, Methodist Clinic 402- 354- 5890 https://www.md.com/doctor/daniel-lydiatt-md
•Dr Coughlin, Methodist Hospital, Omaha (Head and Neck Oncologist, has done external skull base surgery 7-10 times, and steroid injections) https://www.mhsdoctors.com/physicians/11116003
•Dr Manthei, Nevada Eye and Ear 702- 896- 6043 www.nevadaeyeandear
•Dr Bradley Simmons, Fingers Lake ENT, Canandaigua, 585- 396- 3110 www.flent.com
•Dr Yosef Krespi, Lenox Hill Hospital, Manhattan 212- 262- 2929 https://www.northwell.edu/find-care/find-a-doctor/otolaryngology/dr-yosef-krespi-md-11355020
•Dr Peter Constantino, Lenox Hill Hospital, Manhattan 212- 262- 2929 (mentioned by a member, but don’t know if he’s done any surgeries)
•Dr Mark deLacure, NYU, New York City (has done surgery on 2 or 3 members) https://nyulangone.org/doctors/1326049453/mark-d-delacure
Dr Andrew Tassler, Otolaryngologist, New York City, has done a couple of intra-oral surgeries.
•Dr Donna Sharpe , Duke, Durham 919- 220- 2020 https://www.dukehealth.org/
•Dr Richard Gillespie, Monroe 704- 289- 8220 http://richardgillespie.md.com/
•Dr Matthew Ellison, Duke, Raleigh 919- 862- 5730 (recommended by one member although didn’t diagnose her calcified ligaments as ES)
•Dr. Trevor Hackman, 101 Manning Drive UNC Ear, Nose and Throat Oncology Clinic – in the N.C. Cancer Hospital, Chapel Hill, NC 27514, (984) 974-6484 (Does intraoral robotic surgery - removes styloid to skull base & stylohyoid ligament) Has trained Dr Patel, he’s now doing surgeries.
•Dr Lamarre, Cleveland Clinic Head and Neck Institute, Main Campus https://my.clevelandclinic.org/staff/17359-eric-lamarre
•Dr Brian Burkey, Cleveland Clinic, 216- 444- 6691 ( Otolaryngologist/ ENT, Head and Neck surgeon. At least one successful surgery, but only believes in Classic ES, not vascular) https://health.usnews.com/doctors/brian-burkey-12088
•Dr Lorenz, Otolaryngology, Cleveland Clinic Main Campus https://my.clevelandclinic.org/staff/4447-robert-lorenz
•Dr Eugene Choi, Ohio State University, Columbus 614- 366- 3687 (external, successful surgery, but I couldn’t find any record of him at this facility & previous web address for him no longer valid, see Dr Old below. Here’s the Otolaryngology website: https://wexnermedical.osu.edu/departments/otolaryngology/team )
•Dr Matthew Old, Otolaryngology, Ohio Sate University, James Cancer Hospital, Columbus (one surgery that we know of)
•Dr Arick Forrest, Ohio Sate University 614- 366- 3687 (has done several successful surgeries) https://wexnermedical.osu.edu/find-a-doctor/l-arick-forrest-md-2677
•Dr Richard Nelson, Toledo ENT, Maumee 419- 578- 7555 http://www.toledoent.com/rjnelson.htm
•Dr Brad deSilva, OSU Wexner Hospital, https://wexnermedical.osu.edu/find-a-doctor/brad-desilva-md-22675 He has also done hyoid bone surgery.
•Dr. Yash Patil, 222 Piedmont Ave #5200, Cincinnati, OH, (513) 475-8400, https://www.uchealth.com/physician/yash-patil/
•Dr Greg Kempl, Stephenson Cancer Centre/ OU Physicians Otorhinlaryngology Clinic, Oaklahoma City 405- 271- 7559 (otolaryngologist, need a physicians referral) https://stephensoncancercenter.org/Patients/Clinics-Services/Head-and-Neck-Cancers/Treatment-Team/greg-krempl-md
•Dr Erik Dierks, Head and Neck Surgical Assoc., Portland 503- 244- 1371 https://head-neck.com/eric-dierks/ - now semi retired, but Dr. Baber Khatib is now doing surgery here (has done bilateral intra-oral surgery without removing tonsils).
•Dr Andrew Patel, PDX ENT, Pacific Northwest Portland 503- 222- 3638 (Otolaryngologist) https://pdxent.com/
•Dr Joshua Schindler, 3303 SW Bond Ave OHSU Northwest Clinic for Voice and Swallowing, South Waterfront Center for Health and Healing Building 1, Suite 15, Portland, OR 97239, (503) 494-5947, https://www.ohsu.edu/providers/joshua-s-schindler/9EF420F1ED06418895F18EF1278ED60A?utm_source=gmb&utm_medium=organic&utm_content=59c4959b-a363-53b5-8065-7cbeb0ecee7d Has apparently done 18 sucessful surgeries, intra-oral and external.
•Dr Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. https://hospitals.jefferson.edu/find-a-doctor/c/cognetti-david-m.html
•Dr Jason Newman, Dr Jason Lee, U of Pennsylvania, 800 Walnut Street
18th Floor, Philadelphia, PA 19107, (215) 829-5180
(head and neck, skull base surgeon) https://www.pennmedicine.org/providers/profile/jason-newman
•Dr Kevin Leahy U of Pennsylvania, Philadelphia https://www.pennmedicine.org/providers/profile/kevin-leahy
Also another doctor at U of Pennsylvania, Philadelphia, doesn’t want to be named, but contact scheduler Lindsay Flood 215- 829- 5180/ 800- 789- 7366, ask for her & say you have ES and would like scans to be reviewed by the appropriate surgeon.
•Dr Carl Snyderman, Uni of Pittsburgh 412- 647- 2100 (Otolaryngologist, brain surgeon, neurologist, skull base. Diagnosed one member) http://www.neurosurgery.pitt.edu/centers-excellence/cranial-base-center/carl-snyderman
•Dr Roger Levin, Harrisburg https://health.usnews.com/doctors/roger-levin-535963
•Dr. Raj Dedhia, 3400 Spruce St, 5 Ravdin, Philadelphia, (215) 662-2777
•Dr. David Goldenberg, 200 Campus Dr Suite 400, Entrance 2, Hershey, PA 17033, (717) 531-6822, https://hmc.pennstatehealth.org/otolaryngology
•Dr Eric Lentsch, Medical University of South Carolina, Charleston 843- 792- 3531 (Otolaryngologist, Head and Neck Cancer) https://muschealth.org/muscapps/providerdirectory/lentsch-eric Does intra-oral surgery, but does several incisions to get as much of the styloid out as possible.
•Dr Mark Williams, Southern Hills, Nashville (615) 832- 2200 http://entson.net/contact-us/
•Dr. Kyle Mannion, 1215 21st Ave S #7209, Nashville, (615) 322-6180 https://vanderbilthealth.com
•Dr. David Armstrong, 901 Riverfront Pkwy #300, Chattanooga, TN, (423) 698-8981 http://chattanoogasinusrelief.com
•Dr Donald T Donovan, Baylor College of Medicine 713- 795- 5900 (external surgery, successful on one member, but not helpful to another) https://www.bcm.edu/people/view/donald-donovan-md-facs/b16ef3bb-ffed-11e2-be68-080027880ca6
•Dr Newberry, SAMCC Army Hospital, San Antonio
•Dr Teresa Chan-Leveno, University Of Texas Southwestern Medicine Centre, Dallas 214- 645- 8898 (Otolaryngologist) https://utswmed.org/doctors/teresa-chan-leveno/
•Dr Agan, University Of Texas Southwestern (says she has had success with ES surgery- one member saw her but opted to travel to someone more experienced) https://utswmed.org/doctors/ashley-agan/
•Dr Lawrence Weprin, Dallas (Otolaryngologist) http://www.entnorthtexas.com/Pages/DocView.aspx?ProvID=10977
•Dr Richard Ragsdale, Presbyterian Hospital, Allen 972- 747- 4646 (ENT/ Otolaryngologist, successful surgery reported) May be retired
Dr Ron Karni, UT Physicians, Memorial Hermann Surgery Centre, Houston,
•Dr Marshall Smith, Salt Lake City (Successful thyroid cartilage surgery on ramblinman)
•Dr Pramrod Sharma, University of Utah & Huntsman Cancer Institute, Salt Lake City. Neck tumor & Skull Base surgeon, does external surgery, has done about 20.
•Dr Stephen Early, University of VA, Charlottesville 434- 243- 6098 (Successful surgery reported, but is now only taking pediatric patients) https://med.virginia.edu/otolaryngology/faculty/stephen-v-early-m-d/
•Dr John Sinacori, EVMS Otolaryngology, 600 Gresham Dr Suite 1100, Norfolk 757- 388- 6200
•Dr. Katherine Fedder, 2nd Floor, Suite 2200, 415 Ray C Hunt Dr., Charlottesville, VA 22903 (434) 982-3965
•Dr Neil Futran UW Medical Center, Seattle 206- 598- 4022 (successful intra-oral surgery) http://www.uwmedicine.org/bios/neal-futran
Dr Davidson, Georgetown, Washington- we believe one member has had intra-oral surgery with him.
•Dr Robert DeFatta, Chippewa Falls (says he’s done at least 5 ES surgeries, but not on any members that we know of) https://defattaent.com/
•Dr. S Nalwa, 512 S 28th Ave, Wausau, WI 54401, (715) 847-202, https://entwausau.com