I'm new to the site and pretty sure I have ES. I'm a 32yr old male and I've been through the usual motions for several months and finally persuaded my ENT to get a 3D CT scan which shows both styloids to be 49mm in length, I have all the standard symptoms and have been referred to Guys St Thomas in London UK which is a couple of hours from where I live. I can't see any reference to the surgeon I'm seeing having done ES surgeries before but will obviously discuss this once I get my appointment.
So far I'm only really getting pain on one side but I get the odd pain on the other side now and then. I expect it will likely go the same way at some point so hopefully they will do both sides long term.
From what I've read the person I'm going to see is a skull base surgeon, I know many people have spoken highly of Mr Rogan Corbridge so I will certainly mention him if my surgeon hasn't performed any ES procedures before. If anyone knows of any other good UK surgeons I'd be very grateful if they could recommend anyone, I've checked the spreadsheet on the forum but this seems to be mostly US based although a very good idea.