I am seeing a doctor (Dr Hepworth) who is taking my symptoms seriously and has ordered an angiogram to see where my jugular vein is compressed and what is causing it. (Already had CT scan, ultrasound and eye exam.) I am waiting to get it approved by insurance so I can schedule it.
I’ve been dealing with “migraines” (pain behind right eye) intermittently for years and then since March have had horrible neck, ear, shoulder, arm pain on right side. I had been using tramadol to control this pain for a while but my doctor does not want me taking it any longer. Understandable. However, I am in so much pain the past two weeks I feel like I am losing my mind. For the past few months I was at least able to sleep OK and really the only time I did not feel horrible is right when I would wake up. Now, I cannot sleep, symptoms keeping me awake. I have stabbing pain behind my right eye all of the time, my throat is burning and feels like my ear is full of fluid or something. I am desperate for relief. I called the doctor’s office last week and they recommended I try Aleve instead of ibuprofen and to drink dandelion tea. The aleve does not do sh*t, I can’t really notice a difference with the tea. Aleve works worse than ibuprofen (which I am taking about 1200 mg per day, when not taking aleve. Not great I know.) I am not seeing the doctor again until August 27 and do not even know when I will have the angiogram done at this point. Even then it’s just a test and not treatment. I am at a loss and feel so worthless. I don’t know how much longer I can take it and have even considered walking into the ER just so maybe I can feel normal for a day. It’s just really taking a toll on me and it seems like my symptoms are worsening. I went on a 4 mile hike yesterday and did have some relief during that time and part of the day, but this morning it is so bad again and I barely slept. Does anyone have advice? Is it acceptable to call my doctor’s office and tell them what I am experiencing? I cannot deal with this level of pain for another month. I feel like last week when I called the nurse seemed annoyed and assumed I was drug seeking. Doesn’t help that I am a terrible advocate for myself and am pretty scared and terrified of doctors. I honestly will try anything recommended at this point. It would be one thing if there was a light at the end of the tunnel with a treatment or surgery but I’m still doing tests and they don’t even know for sure if it is my styloid or what. I’m only 30 years old and feel sad that this is my life right now. People close to me are sick of me complaining about this nonstop, so I’m posting/venting here instead. Any suggestions much appreciated!